2023 PCD Artist Project

Written by PCD Smiles on 13 October 2023. Posted in PCD Artist Project 2023.

2023 PCD Artist Project; October 17, 2023

Today’s featured photographer is Lizbeth with her submission titled “Mystic”.

“Most medical textbooks still propagate the myth that PCD is a mild disease associated with a normal lifespan. We have now learned through large population-based studies and registries that there is a wide spectrum of severity of lung disease in PCD, from relatively normal lung function associated with a normal lifespan to progressive widespread bronchiectasis with need for lung transplantation in early adulthood. Although the very limited longitudinal data available suggest that pulmonary function may be stable over many years when appropriate therapy is instituted, the largest cross-sectional study to date, which evaluated over 100 North American patients with PCD, suggests that there is a definite decline in lung function with age, with many adult patients having lung function within the transplant range.” ~ Primary ciliary dyskinesia: Myths and realities; Sharon D Dell, BEng MD FRCPC

The PCD Artist Project is a collaborative effort by artist to raise awareness for PCD or primary ciliary dyskinesia and support the PCD Smiles program. Each artist who submitted art work to the project either has PCD or has a PCD friend or family member.

The PCD Artist Project’s 2023 exhibition merchandise ranges from apparel, giftware, home furnishings, and printed products such as posters, prints, wall art, and other items, all created from our exhibition; which can be viewed on PCD Smiles’s website. It is our hope that you support the PCD Smiles program by purchasing exhibition merchandise today.

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Written by PCD Smiles on 13 October 2023. Posted in PCD Artist Project 2023.

2023 PCD Artist Project; October 16, 2023

Today’s featured artist is Lea Andrea.

“However, there is currently no recognized diagnostic standard for PCD, which brings great challenges to its diagnosis and treatment. In addition to clinical data, the current diagnostic methods of PCD mainly include PICADAR, nasal exhaled nitric oxide, transmission electron microscopy, high-resolution immunofluorescence, high-speed video microscopy analysis and gene detection.” ~ Progress in diagnosis of primary ciliary dyskinesia - Shuna Wei, Haojun Xie, Yuanxiong Cheng

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Written by PCD Smiles on 13 October 2023. Posted in PCD Artist Project 2023.

2023 PCD Artist Project; October 15, 2023

Today’s featured photographer is Reneé Dale with her submission titled “Scottish Backroads”.

A small percentage of affected people do not have situs solitus or situs inversus totalis, but have organ placement that is between normal and mirror image. This is called situs ambiguus—or heterotaxy if there are also serious heart defects. Situs ambiguus can affect only the organs in the chest, only those in the abdomen, or organs in both. It can be mild or severe and may result in additional health issues for people with PCD. Congenital heart defects (CHD) are 200 times more common in PCD patients with situs ambiguus or heterotaxy. ~ American Thoracic Society

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Written by PCD Smiles on 08 October 2023. Posted in PCD Artist Project 2023.

2023 PCD Artist Project; October 14, 2023

Today’s featured artist is Lizbeth with her submission titled “Rose”.

“Recently, delineation of genotype–phenotype relationships has been emerged in patients with PCD. For example, patients with absent inner dynein arm with microtubular disorganization who harbor a CCDC39 or CCDC40 mutation, have worse lung function compared with patients with outer dynein arm defects and DNAH5 mutation. In contrast, patients with RSPH1 mutations appear to have mild lung function impairment. However, caution is needed when interpreting these genotype–phenotype data based on a small number of patients.” ~ Clinical and genetic spectrum of primary ciliary dyskinesia in Chinese patients: a systematic review - Bo Peng, Yong-hua Gao, Jia-qi Xie, Xiao-wen He, Cong-cong Wang, Jin-fu Xu & Guo-jun Zhang

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!

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Written by PCD Smiles on 08 October 2023. Posted in PCD Artist Project 2023.

2023 PCD Artist Project; October 13, 2023

Today’s featured photographer is Jack with his submission titled “Be Still and Know”.

“Unexplained neonatal respiratory distress is a possible manifestation of PCD. Transient tachypnea of the newborn, starting soon after birth, is a well-known cause of respiratory distress in term and near-term newborns, and resolution by the fifth day of life is generally reported. Conversely, more than 75% of full-term neonates with PCD require continuous supplemental oxygen for days to weeks. The most stricking finding of a recent study was that pneumonia and multiple lobar collapse that require prolonged hospital stay may be very severe in newborns who will be later confirmed as PCD.” ~ Primary Ciliary Dyskinesia: An Update on Clinical Aspects, Genetics, Diagnosis, and Future Treatment Strategies

🧡 All proceeds from the PCD Artist Project go to support the PCD Smiles Cheer Package program! 🧡

Visit our shop today for your exhibition merchandise and more!

Join our Facebook group Turtle Talk Café today, click here.

We have several ways that you can donate to PCD Smiles;

- Visit Smile E. Turtle's Amazon Wishlist

- For more information on how you can donate, please visit our "Donation" page to check out our "Do & Don't policies.

- Or sponsor a PCD Smiles cheer package today!

- To shop for your “Official” turtle care ribbon gear today, visit PCD Style or Smile E. Cove

Thank you for your consideration!